Trials and Tribulations....

I think I have finally learned the lesson that I should have learned years ago, things just aren't ever going to be easy living in such a crazy world. I keep hoping they will be, but alas I think I have finally come out of my bubble to accept the truth. My children, as wonderful as they are will continue to test me until I am long gone, I will never fully understand the human body as I did not study this and I will never know the reasons that we have had to move so much. AHHH! Twin boys are so much fun. They make me laugh, bring me joy, cry with me, get excited with me and test every boundary that I might have ever imagined. Some days I don't know who is going to fall asleep first :) Today Christopher decided was Happy Brother's Day. All day walked around saying Happy Brother's Day. So precious! Here is a picture of the boys loving each other in a kiss today to celebrate. They really are best friends! I don't think Brian and I could have ever hoped for more. They are everything to us!!!!!

Isaac went to Boston 5 weeks ago, and it was then they talked about putting in a g-tube if he did not gain weight. Well I am happy to say that he has gained weight! We haven't gone back yet, and we never really know what may happen...but Isaac is now 29lbs and about 36 inches! He got taller too! He can now turn the light switch on and off and is so proud that he can do what his little brother can :) We need him to keep growing, keep absorbing, keep stooling and most importantly...stay healthy and nutritious! I'm learning how Isaac works. It took me a long time, but he is willing to eat anything I eat if it seems like it's new and special. So now I need to cook and pretend it's takeout. The other night he ate a tofu and vegetable ginger stir-fry. Carrots, onions, scallions, pea pods, water chestnuts, baby corn and zucchini. He loved it. Christopher is 34lbs and I have no idea how tall...just tall. He is growing like a weed! The boy is starting to outgrow his size 10 shoes!

This coming weekend I will begin moving some of our stuff into our new home while Brian is away on business. Then on Tuesday we will do the big move and we will be in our new place. We are all so excited, but it still stinks that we were forced to move after only  being here for 8 months because the landlord needed to move back in. We know that each move has been from God and that he has provided for us every step, but it's difficult just the same. I have become an amazingly organized mover, but that doesn't mean I enjoy packing boxes for weeks only to have to unpack them quickly to find summer clothes :) However the one thing we are so excited about is that the boys can stay in their pre-school. I honestly have never seen another school like this. We had the option of picking any town we wanted to live in, and financially this is not the town for us, but school wise, it is. The things the boys are learning, the growing that has taken place in both boys is amazing. They love going to school. Christopher draws pictures of all his teachers and Isaac is in love with his. When he sees her or his two favorite paraprofessionals, he just becomes the biggest flirt. They are beginning to make real friends and it's just great. They have PE and Library time. We get full reports after each day telling us everything that they did, ate, drew, painted, went outside, any updates. It's great! So we are so thankful that the boys will be able to continue in their school next year!

Isaac one week old

On June 12th, the boys and I will be walking in Boston to support Children's Hospital Boston. It's a short walk, only 2 miles, but that isn't the important thing. What is important to us is that all the money that is raised will go back directly to Isaac's short-gut team. Most of you know about this, but in case you don't....Isaac's main team consists of a surgeon, a GI doctor, a nutritionist, a nurse practitioner and anyone else who might be needed that day. It is because of this amazing team that Isaac is doing so well. When we left the hospital in Connecticut without much support from many doctors, Isaac was not expected to live, and if he did, his quality of life would be horrific. However because of each and every person from nurse to surgeon who came in touch with Isaac and different medicines and research medicines, Isaac has a great life today! He still has many GI issues, but each year they get better and better. Isaac is alive! Isaac does not have any tubes! Isaac eats everything by mouth! Isaac walks! Isaac talks! Isaac runs! Isaac is SMART (he has the two worst brain bleeds and was expected not to even know who we were)!!!!!!!!!! It is because of going to Boston and being put on Omegavan which is fish oil, that Isaac's intestines grew and his brain was able to get better. And let's not forget to give thanks to God! He is the reason Isaac is healed! He gave this knowledge to each person who helped Isaac and we are forever thankful.

The day before Isaac left for Boston

So on June 12th we will be walking to support this department. So that when families like ours who have outstanding medical bills, who are living away from home, who can't even grasp how they will pay their thousands and thousands medical bills will have a chance. Many meds for Isaac were not covered and yet we were able to get some money to pay for them from people who did things like this before. We are so thankful for them and want to help others. Please, if you feel you want to help donate to this amazing cause...especially after having seen Isaac as a preemie, Isaac the day he went to Boston and Isaac now, please click on the link below. We would be forever thankful that you helped us make a difference in another child's life.

https://howtohelp.childrenshospital.org/walk/pfp/?ID=CJ0280