The last month has been crazy. June had so many ups and downs. We entered into a new stage with Isaac. We like to call it the stage that has to go so we can have our child back. Isaac now screams at the top of his lungs when he wants something. Now you may think, "Yes Jenn, every child does this." But I mean that it sounds as if we are beating him with a stick. It's so embarrassing! And he'll do it anywhere, but specifically when it's bed time. Thank goodness Brian is home this month at night so I think I'd have to move into the garage just to keep the street from being angry with us. He did it the other day when I took the boys for a run. As if pushing 60lbs of child isn't hard enough. I now had to talk, while running and pushing the 60lbs. We even managed to wake up the set of triplets that had been peacefully sleeping. Yep that's our boy :)We had a 2 week period where we started with illnesses again. It was not fun at all. First CJ got croup again. Then it turned into an ear infection. Then we took him back to the doctor because we couldn't get his wheezing to stop. Now he has a new sick plan that seems to be working great. At the same time we took Isaac because he was getting a runny nose and starting down the same path. Turns out that he has a form of Rosacea that most kids can not get until they are between 6-12 years old. Our doctor turned and started laughing. She said nothing with your children surprises me any more. Yep it's official. The Campbell Twins are not normal :)
We went to our first Build-A-Bear Birthday Party. It has so much potential of being an amazing experience. We were worried about Isaac because he was a bit cranky, but as it turned out, Isaac loved EVERY minute of it. He had so much fun and LOVES his karate bear. But poor CJ who was a little over-whelmed from the beginning from lack of sleep, did not have such a great time. He was about to. He was heading over to sit next to his friend Jenna when all of a sudden he got sat on. Not by a child, but by a rather large woman. She not only sat on him, but smacked his head and body into the wall. Needless to say, he cried for the next 45 minutes and didn't want to take part in any of it until the very end. Now when he looks at his puppy he always says, "Momma Owe! Sit on head." I think we may need to redo this experience so he can see why every other child in the world loves it.
Yesterday I took Isaac to Boston. It was a very long day without much sleep. Nothing exciting happened though. Now that Isaac is doing so well, they don't need to monitor as much. Hopefully next week when Isaac's Surgeon comes back from Japan they can set up his OR date to have his g-tube removed. This would make his life so much easier for many reasons. Plus it would save us hundreds of dollars on the dressings that we use. Now the stinky thing is that he has not gained any weight. In 4 months he only gained 4 oz. So we need to figure this out. He's now going to start drinking 1.5 containers of Pediasure. Hopefully this will help him get chunkier. He hasn't gotten taller in about 8 months. So it's very important that we help him get bigger so he can grow in all areas. Other than that, nothing happened. Although I did see a very sweet woman who I met on Isaac first day there.
It's amazing how God places the sweetest people in our lives. In every hospital we have not only had amazing nurses and doctors, but I have met amazing mothers. At UCONN I met this wonderful woman named Julie who inspired me so much! Then at CCMC I met sweet Meredith who met us during one of Isaac's worst moments. She still gives me so much encouragement and I am so thankful that God blessed me with such a great friend! Then at Boston when I was so over-whelmed having one child in the NICU at CCMC and another in Boston, Holly was there to help me through life as a Mother of a short-gut kid. Something I had never ever thought I would have to endure. Staying in another state, away from one of babies, away from my husband, my job, my regular life, my bed....I began a new life and Holly was there to help me. Seeing Holly yesterday in the waiting room gave me so much peace. To see her there, all the way from North Carolina, smiling and enjoying her daughter was wonderful. God blessed us by bringing us both to the greatest Intestinal Rehabilitation Center in the world. Now our munchkins are doing so great!!!
We are still looking for a place to live. We really aren't sure what God is doing. Brian and I are still waiting for Him to show us where to go. It's a little frustrating because things here are a little tense. But we know that He is in control and He will provide everything we need as it arises. Brian and I do have some specific towns that we are interested in, only because the boys start pre-school in February and we want the best for them. Especially for Isaac has PT, OT and Speech will still be key for his development. We'd really like to get into a town that we can find ourselves staying in forever. Moving every year really does stink. But again, it all depends upon God and where He brings us to.
